Well, what a deeply unpleasant week this has been.

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Warenwolf
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Re: Well, what a deeply unpleasant week this has been.

Post by Warenwolf » Mon, 17. May 21, 21:02

Sorry to hear this :( - wish you well with what is to come.

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notaterran
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Re: Well, what a deeply unpleasant week this has been.

Post by notaterran » Tue, 18. May 21, 06:09

Best wishes and a quick recovery.
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Re: Well, what a deeply unpleasant week this has been.

Post by pjknibbs » Wed, 19. May 21, 08:11

Well, just had an ultrasound scan to see if there's any significant build-up of fluid in the lump that might need draining--apparently all OK for now, so at least some good news. I'm booked to go in to see the doctor on Friday to discuss the biopsy results, too. Just the slightly scary waiting period now.

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fiksal
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Re: Well, what a deeply unpleasant week this has been.

Post by fiksal » Thu, 20. May 21, 02:49

Oof. It's hard to accurate imagine.
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Re: Well, what a deeply unpleasant week this has been.

Post by Praefectus classis » Thu, 20. May 21, 12:56

All the best from me and hope things turn out fine for you.
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Re: Well, what a deeply unpleasant week this has been.

Post by pjknibbs » Fri, 21. May 21, 12:17

Well, results from the biopsy are entirely inconclusive, they think because the sample was taken from an area of necrotising (e.g. dead) tissue. So I'm going to have to have another one, this time, guided by a CT scan so they avoid the dead area. Which I'm not looking forward to because the biopsy was probably one of the most unpleasant things I've ever had done...

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Re: Well, what a deeply unpleasant week this has been.

Post by pjknibbs » Fri, 4. Jun 21, 18:11

Got booked in for that second biopsy with a whole 2 days of notice, went in and had the procedure this morning. I thought the first time was unpleasant, but it was just an amuse bouche for this time. I was in that CAT scanner for an hour and a half while they slowly inserted a needle deeper and deeper, checking each time to see if it was in the right place (because the doctor can't be in the room when the CAT scanner is running, radiation dontcha know). On at least two occasions the local anaesthetic they were using just plain didn't work and I voiced my pain quite vocally, and both times the doctor said, "Oh, did that hurt?" NO, you blithering idiot, I'm screaming in pure joy at this whole thing!

If this one doesn't come up with results I have no idea what I'll do, because I am determined I'm not going through that again.

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Re: Well, what a deeply unpleasant week this has been.

Post by Fishille » Fri, 4. Jun 21, 19:22

I feel for you, I don’t know where you are located, but if you are in the US, MD Anderson would have done you much much better. I don’t understand why they would be using a CT Scan on a needle core biopsy, I’ve had both of mine done by ultrasound, painful process still, (the first biopsy being much worse then the second), but much faster.

If you need any advise, or anything hit me up, I’m going on 3 years in remission with NLPHL (nodular lymphocyte predominant Hodgkins lymphoma) stage IVB and I’ve got a lot of experience, and am willing to help anyone.

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Re: Well, what a deeply unpleasant week this has been.

Post by pjknibbs » Fri, 4. Jun 21, 20:07

I'm in the UK. The first biopsy was done via ultrasound but that failed, because ultrasound isn't a sufficiently precise tool to tell the difference between living and necrotised tissue inside a tumour, so he got a bad bit of tissue. Hence the CT scan requirement. Frankly, it was the doctor asking "Did it hurt?" that annoyed me more than anything else--he's a doctor, he ought to bloody know what pain looks like and take steps to counteract it without having to ask!

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Re: Well, what a deeply unpleasant week this has been.

Post by Vertigo 7 » Fri, 4. Jun 21, 21:04

I had to have a finger pined up a few years back and I can attest to the near worthlessness of local anesthetics. They lasted all of 5 minutes and had me crying like a baby as dude was drilling into my bones.
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Re: Well, what a deeply unpleasant week this has been.

Post by LV » Mon, 14. Jun 21, 01:07

pjknibbs wrote:
Fri, 4. Jun 21, 20:07
I'm in the UK. The first biopsy was done via ultrasound but that failed, because ultrasound isn't a sufficiently precise tool to tell the difference between living and necrotised tissue inside a tumour, so he got a bad bit of tissue. Hence the CT scan requirement. Frankly, it was the doctor asking "Did it hurt?" that annoyed me more than anything else--he's a doctor, he ought to bloody know what pain looks like and take steps to counteract it without having to ask!
Well on the doctor's behalf, you've always needed a good probing


Keep your chin up Paul :)

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Re: Well, what a deeply unpleasant week this has been.

Post by pjknibbs » Mon, 21. Jun 21, 19:38

OK, latest news: I've been booked to see an oncology specialist on Wednesday. Given what those doctors specialise in, I think we can safely assume the diagnosis of lymphoma is right on the mark, but beyond that, will report more when I've had the appointment and I know what's happening.

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Re: Well, what a deeply unpleasant week this has been.

Post by Chips » Tue, 22. Jun 21, 01:17

Thankfully not much wait to dwell upon to find out - lets hope it's as good news as can be (given what you suspect it is).

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Re: Well, what a deeply unpleasant week this has been.

Post by Bazza » Tue, 22. Jun 21, 02:30

pjknibbs wrote:
Mon, 21. Jun 21, 19:38
OK, latest news: I've been booked to see an oncology specialist on Wednesday. Given what those doctors specialise in, I think we can safely assume the diagnosis of lymphoma is right on the mark, but beyond that, will report more when I've had the appointment and I know what's happening.
Good luck for Wednesday Paul. Wish you all the best.
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Re: Well, what a deeply unpleasant week this has been.

Post by pjknibbs » Wed, 23. Jun 21, 16:45

Well, had the meeting, and it turns out I have a 20cm lymphoma tumour. They want to get me on chemo ASAP because if this gets much bigger it could be genuinely life-threatening.

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Re: Well, what a deeply unpleasant week this has been.

Post by Alan Phipps » Wed, 23. Jun 21, 18:43

I'm very sorry to hear about your confirmation of a tumour. Did you really mean 20cm (8 inches) as that seems astonishingly big if you did.
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Re: Well, what a deeply unpleasant week this has been.

Post by Mailo » Wed, 23. Jun 21, 20:00

pjknibbs wrote:
Wed, 23. Jun 21, 16:45
Well, had the meeting, and it turns out I have a 20cm lymphoma tumour. They want to get me on chemo ASAP because if this gets much bigger it could be genuinely life-threatening.
Damn, I kept hoping for you, I'm very sorry to hear that. Still, better to know so that you can fight it than find it when it is too late.
All the strength in the world to get through chemo. I just had to watch my wife go through it last year. At least medicine has made great advances in the field in the last decade or so, it is now more likely to be successful and less side effects. While I am sure you will get all the information (and more) you need during the treatment, my wife claims her walking a lot (daily walks of 30-60 minutes) helped her immensly getting through it without too much damage.
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Re: Well, what a deeply unpleasant week this has been.

Post by pjknibbs » Wed, 23. Jun 21, 20:41

Alan Phipps wrote:
Wed, 23. Jun 21, 18:43
I'm very sorry to hear about your confirmation of a tumour. Did you really mean 20cm (8 inches) as that seems astonishingly big if you did.
Yes, I really did mean that big. Hence the problem!

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Re: Well, what a deeply unpleasant week this has been.

Post by burger1 » Thu, 24. Jun 21, 23:24

My condolences. 20 cm sounds pretty large. Hopefully chemo works out.

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Re: Well, what a deeply unpleasant week this has been.

Post by pjknibbs » Fri, 25. Jun 21, 00:58

Well, that was a bit sudden. Got a call at home about 8:30pm saying, "This is Christie Hospital, are you on your way here?". I obviously pointed out that no-one had actually asked me to attend the hospital as yet, so they apologised for that but said I needed to get there ASAP before the free bed went. So I headed off down there, and am currently typing this message via the NHS's free wi-fi while I wait for another battery of tests to be run.

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