Ah, sorry, yes - I understand. I really do wish you all the best, and hope whatever treatment you start on next eradicates the remainder of the tumour.
Please, if you can, keep us all updated on this thread.
Well, what a deeply unpleasant week this has been.
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Re: Well, what a deeply unpleasant week this has been.
“Man, my poor head is battered,” Ed said.
“That explains its unusual shape,” Styanar said, grinning openly now. “Although it does little to illuminate just why your jowls are so flaccid or why you have quite so many chins.”
“I…” Had she just called him fat? “I am just a different species, that’s all.”
“Well nature sure does have a sense of humour then,” Styanar said. “Shall we go inside? It’d not be a good idea for me to be spotted by others.”
“That explains its unusual shape,” Styanar said, grinning openly now. “Although it does little to illuminate just why your jowls are so flaccid or why you have quite so many chins.”
“I…” Had she just called him fat? “I am just a different species, that’s all.”
“Well nature sure does have a sense of humour then,” Styanar said. “Shall we go inside? It’d not be a good idea for me to be spotted by others.”
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greypanther
- Posts: 7307
- Joined: Wed, 24. Nov 10, 20:54
Re: Well, what a deeply unpleasant week this has been.
Oh boy yes. It is so the case about so much in this life. Please try to stay positive, difficult as it is, as to my mind, state of your mind is so important. I too wish you well.
Pray that there's intelligent life somewhere up in space
'Cause there's bugger all down here on Earth
'Cause there's bugger all down here on Earth
Re: Well, what a deeply unpleasant week this has been.
Sorry to hear that, it's not the sort of news you want to hear. However, the positive is that there remains treatment options by the sounds of it, so here's hoping.pjknibbs wrote: ↑Fri, 19. Nov 21, 13:58I return to the thread with both good and bad news. First, the good: the PCR test came back negative and the cough seems to be easing somewhat, so I apparently don't have Covid.
The bad: I had my booked video call with my oncologist. Headline news is: the chemo hasn't done the job. It made everything much smaller, but seems there's some resistant bits of the tumour in there. So, next step is to have a different type of chemo (guess I can wave goodbye to the small amount of hair I'd managed to regrow), followed up with a stem cell transplant to aggressively target the recalcitrant bits of tumour. She wants me to have at least one session of this new chemo before Christmas, so they're moving fast on this.
To say I'm disappointed would be an understatement...while I kind of expected this because of stuff I've noticed since chemo ended, it's still far more gut-wrenching to hear it in person than to imagine it.
Re: Well, what a deeply unpleasant week this has been.
Been to see the new doctor about the new chemo. The basics seem fairly simple--two chemo sessions 3 weeks apart, then a PET scan to determine how well I'm responding to the treatment. Next comes the fun part. If the PET scan shows I've responded well then I have to have a *FIVE WEEK* hospital visit during which they extract stem cells from my blood, give me an intensive 5-day chemo session, then put the stem cells back in to speed up the recovery of blood and bone marrow. Really, really not looking forward to that! I guess I really need to get a better laptop that I can actually do a bit of gaming on else I'll be climbing the walls by the end of the first week...
Re: Well, what a deeply unpleasant week this has been.
Firstly, I hope everything goes as well as possible, which I am sure it will.pjknibbs wrote: ↑Wed, 24. Nov 21, 18:30Been to see the new doctor about the new chemo. The basics seem fairly simple--two chemo sessions 3 weeks apart, then a PET scan to determine how well I'm responding to the treatment. Next comes the fun part. If the PET scan shows I've responded well then I have to have a *FIVE WEEK* hospital visit during which they extract stem cells from my blood, give me an intensive 5-day chemo session, then put the stem cells back in to speed up the recovery of blood and bone marrow. Really, really not looking forward to that! I guess I really need to get a better laptop that I can actually do a bit of gaming on else I'll be climbing the walls by the end of the first week...
Sounds like it's some potent stuff you're gonna be getting, and five weeks in hospital (I think that's what you're saying) is a bargain price to pay in my mind.
Wishing you all the best, and if you get fed up of gaming, I'm happy to offer up some book recommendations!
“Man, my poor head is battered,” Ed said.
“That explains its unusual shape,” Styanar said, grinning openly now. “Although it does little to illuminate just why your jowls are so flaccid or why you have quite so many chins.”
“I…” Had she just called him fat? “I am just a different species, that’s all.”
“Well nature sure does have a sense of humour then,” Styanar said. “Shall we go inside? It’d not be a good idea for me to be spotted by others.”
“That explains its unusual shape,” Styanar said, grinning openly now. “Although it does little to illuminate just why your jowls are so flaccid or why you have quite so many chins.”
“I…” Had she just called him fat? “I am just a different species, that’s all.”
“Well nature sure does have a sense of humour then,” Styanar said. “Shall we go inside? It’d not be a good idea for me to be spotted by others.”
Re: Well, what a deeply unpleasant week this has been.
Also from me my condolences, Gavrushka. I am so sorry. I know how hard it is to have to stand next to a loved one fighting this battle, yet being unable to help in a significant way aside from caring for them.
And keep fighting, pjknibbs! As long as there are options, there is hope. Even fighting it to a standstill can help, as there are new options being developed all the time (the treatment that helped my wife did not exist 5 years ago).
And keep fighting, pjknibbs! As long as there are options, there is hope. Even fighting it to a standstill can help, as there are new options being developed all the time (the treatment that helped my wife did not exist 5 years ago).
As a personal service to all who try to keep up with my professional work:
[ external image ]
My script: Shiploot v1.04 ... loot shipwrecks, collect different loot parts and upgrade your ships!
Mein Skript: Schiffswracks looten v1.04 ... Durchsuche Schiffswracks, sammle Lootteile und verbessere Deine Schiffe!
[ external image ]
My script: Shiploot v1.04 ... loot shipwrecks, collect different loot parts and upgrade your ships!
Mein Skript: Schiffswracks looten v1.04 ... Durchsuche Schiffswracks, sammle Lootteile und verbessere Deine Schiffe!
Re: Well, what a deeply unpleasant week this has been.
Well, slightly unwelcome news...I'm due to have my first session of this "super-chemo" on Monday, and I was expecting that to be a regular outpatient appointment, but I've been told today that I'll have to stay in hospital at the very least overnight and maybe for 2-3 days, depending how my kidneys respond to the vast quantity of byproducts that will get dumped into my bloodstream as the tumour cells get killed by the chemo.
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greypanther
- Posts: 7307
- Joined: Wed, 24. Nov 10, 20:54
Re: Well, what a deeply unpleasant week this has been.
Oh that is daunting, I bet...
At least there is not to long a wait for you to sit further in anticipation. I would also see it as a positive that they are prepared for the worst, after all: Plan/ prepare for the worst, then whatever else happens is a doddle! Isn't it? I hope you at least have reading material ready, because it is very short notice to get a decent laptop. Have you been for a Covid test today? I ask because my wife's uncle is going into Aintree hospital on Monday, always presuming he passes the Covid test he had today!
Anyway, good luck for Monday and try to stay calm and as ever: Be well.
At least there is not to long a wait for you to sit further in anticipation. I would also see it as a positive that they are prepared for the worst, after all: Plan/ prepare for the worst, then whatever else happens is a doddle! Isn't it? I hope you at least have reading material ready, because it is very short notice to get a decent laptop. Have you been for a Covid test today? I ask because my wife's uncle is going into Aintree hospital on Monday, always presuming he passes the Covid test he had today!
Anyway, good luck for Monday and try to stay calm and as ever: Be well.
Pray that there's intelligent life somewhere up in space
'Cause there's bugger all down here on Earth
'Cause there's bugger all down here on Earth
Re: Well, what a deeply unpleasant week this has been.
Best of luck for Monday. Yeah, the doctors won't want to take any chances with your kidneys. Dialysis isn't a lot of fun.
“Man, my poor head is battered,” Ed said.
“That explains its unusual shape,” Styanar said, grinning openly now. “Although it does little to illuminate just why your jowls are so flaccid or why you have quite so many chins.”
“I…” Had she just called him fat? “I am just a different species, that’s all.”
“Well nature sure does have a sense of humour then,” Styanar said. “Shall we go inside? It’d not be a good idea for me to be spotted by others.”
“That explains its unusual shape,” Styanar said, grinning openly now. “Although it does little to illuminate just why your jowls are so flaccid or why you have quite so many chins.”
“I…” Had she just called him fat? “I am just a different species, that’s all.”
“Well nature sure does have a sense of humour then,” Styanar said. “Shall we go inside? It’d not be a good idea for me to be spotted by others.”
Re: Well, what a deeply unpleasant week this has been.
They gave me a test just before I left the hospital today, presumably they'll let me know before Monday if there's a problem.
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Redvers Ganderpoke
- Posts: 1901
- Joined: Tue, 11. Sep 07, 12:38
Re: Well, what a deeply unpleasant week this has been.
Good luck Paul.
A flower?
![[ external image ]](http://qntm.org/files/board/current.png){kind=link}
Re: Well, what a deeply unpleasant week this has been.
The hospital might have some sort of free wifi. There might be tricks to getting it to work. Might be a website to tell you how or the nurses can tell you. Might have to download stuff like netflix, disney, prime video vs streaming it due to wifi quality. Maybe download some stuff prior to the hospital. Some internet sites might be blocked like netflix, etc...? Hopefully someone can bring you some food since hospital food can be bland/unappetizing. If you don't feel like eating theres meal replacement drinks that might be easier to stomach. Also shared room vs private room - headphones? Might also have an iv needle stuck in your hand all the time.
Re: Well, what a deeply unpleasant week this has been.
They do have free Wi-Fi, I've used it when I've been in there before. If this treatment all goes well then they're saying they'll have to have me in for five weeks sometime early next year, though...seriously considering buying a better laptop so I can play slightly more modern games, the CPU in my best machine is 8 years old and using Intel integrated graphics!
Re: Well, what a deeply unpleasant week this has been.
WiFi in the hospital is pretty good, and I've streamed Sky Go in there (Darlington) on occasion. Can you not just use that Nvidia remote play app to temporarily 'upgrade' your laptops graphic capabilities for the duration of your stay? Seems extreme to invest a lot of money in a laptop for such short term use.
If you're going in for an extended stay, make sure you tell the person you'd like visiting to register with the ward clerk on the day you're admitted. Unless the rules have changed, there was only one visitor allowed per patient, and once nominated, they could not be changed.
If you're going in for an extended stay, make sure you tell the person you'd like visiting to register with the ward clerk on the day you're admitted. Unless the rules have changed, there was only one visitor allowed per patient, and once nominated, they could not be changed.
“Man, my poor head is battered,” Ed said.
“That explains its unusual shape,” Styanar said, grinning openly now. “Although it does little to illuminate just why your jowls are so flaccid or why you have quite so many chins.”
“I…” Had she just called him fat? “I am just a different species, that’s all.”
“Well nature sure does have a sense of humour then,” Styanar said. “Shall we go inside? It’d not be a good idea for me to be spotted by others.”
“That explains its unusual shape,” Styanar said, grinning openly now. “Although it does little to illuminate just why your jowls are so flaccid or why you have quite so many chins.”
“I…” Had she just called him fat? “I am just a different species, that’s all.”
“Well nature sure does have a sense of humour then,” Styanar said. “Shall we go inside? It’d not be a good idea for me to be spotted by others.”
Re: Well, what a deeply unpleasant week this has been.
Might also need an extension cord. 6 ft minimum. Might not be long enough if they have lots of machines plugged in. It might create a larger trip hazard if its too short or thick.
Slippers that are slip resistant also. Walking around in socks or bare feet might not be the most comfortable.
You can try Geforce Now but I think there will be too much lag. Theres also Amazon Luna, Stadia, PS Now and Xbox Cloud. Each with its own caveats.
Intel cpus have worse graphics than amd. Amd cpus tend to be buggier.
Slippers that are slip resistant also. Walking around in socks or bare feet might not be the most comfortable.
You can try Geforce Now but I think there will be too much lag. Theres also Amazon Luna, Stadia, PS Now and Xbox Cloud. Each with its own caveats.
Intel cpus have worse graphics than amd. Amd cpus tend to be buggier.
Re: Well, what a deeply unpleasant week this has been.
Well, I wouldn't mind a better laptop anyway, so maybe I'm using this as an excuse, who knows?
[EDIT] OK, second day in hospital, had the chemo yesterday. Last night was quite possibly one of the worst nights I've ever had--they didn't finish pumping me full of drugs and fluids until 3:25am, and any attempts I made to sleep were destroyed by the fact I was so loaded with water I was havving to get up to wee every 25 minutes. Hoping to go home tomorrow but we'll see how it goes.
[EDIT] OK, second day in hospital, had the chemo yesterday. Last night was quite possibly one of the worst nights I've ever had--they didn't finish pumping me full of drugs and fluids until 3:25am, and any attempts I made to sleep were destroyed by the fact I was so loaded with water I was havving to get up to wee every 25 minutes. Hoping to go home tomorrow but we'll see how it goes.
Re: Well, what a deeply unpleasant week this has been.
Just arrived home. Not feeling too bad from the chemo at the moment, but the other chemo didn't really kick my rear until the second week after having it, so I have that to look forward to...
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greypanther
- Posts: 7307
- Joined: Wed, 24. Nov 10, 20:54
Re: Well, what a deeply unpleasant week this has been.
Well, not so bad so far. At least it was a relatively short stay, you are obviously not so unhealthy otherwise after all. ( Hope the kick in the rear stays away.... )
Be well.
Be well.
Pray that there's intelligent life somewhere up in space
'Cause there's bugger all down here on Earth
'Cause there's bugger all down here on Earth
Re: Well, what a deeply unpleasant week this has been.
Echoing Greypanther's sentiments. Be well indeed!
“Man, my poor head is battered,” Ed said.
“That explains its unusual shape,” Styanar said, grinning openly now. “Although it does little to illuminate just why your jowls are so flaccid or why you have quite so many chins.”
“I…” Had she just called him fat? “I am just a different species, that’s all.”
“Well nature sure does have a sense of humour then,” Styanar said. “Shall we go inside? It’d not be a good idea for me to be spotted by others.”
“That explains its unusual shape,” Styanar said, grinning openly now. “Although it does little to illuminate just why your jowls are so flaccid or why you have quite so many chins.”
“I…” Had she just called him fat? “I am just a different species, that’s all.”
“Well nature sure does have a sense of humour then,” Styanar said. “Shall we go inside? It’d not be a good idea for me to be spotted by others.”
Re: Well, what a deeply unpleasant week this has been.
Just been told I'm getting a £250 bonus for Christmas at work, so that low-end gaming laptop is starting to look even more attractive now!